Google
Trusted Resources: News & Events
Latest announcements and gatherings
Rare Disease Day – Home
Rare Disease Day takes place on the last day of February each year. The main objective of Rare Disease Day is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients’ lives.
The campaign targets primarily the general public and also seeks to raise awareness amongst policy makers, public authorities, industry representatives, researchers, health professionals and anyone who has a genuine interest in rare diseases.
Rare Disease Day events are down to hundreds of patient organisations all over the world who work on a local and national level to raise awareness for the rare disease community in their countries.
This event has ended.
+myBinderRelated Content
-
Rare Disease Day at NIH 2023Rare Disease Day® takes place worldwide...
-
Cayenne Wellness Center’s 15th Annual Sickle Cell Disease Educational SummitCayenne Wellness Center’s Annual Sickl...
-
Sickle Cell Summer Enrichment Camp: Piedmont Health Services and Sickle Cell AgencyPiedmont Health Services and Sickle Cell...
-
Rare Disease Day Symposium at the Quinnipiac Frank H. Netter MD School of MedicineSince 2015, the Frank H. Netter MD Schoo...
-
Sickle Cell Foundation of Palm Beach County & Treasure Coast Sickle Cell-ebration Awareness Walk 2023Saturday, December 9, 2023 from 8am to 1...
-
Emerging opportunities in sickle cell disease cure, treatment and pain managementIn support of City of Hope’s recent CI...
-
Roland B. Scott Memorial Symposium: I Want Somebody to LoveRoland B. Scott Symposium on Sickle Cell...
To improve your experience on this site, we use cookies. This includes cookies essential for the basic functioning of our website, cookies for analytics purposes, and cookies enabling us to personalize site content. By clicking on 'Accept' or any content on this site, you agree that cookies can be placed. You may adjust your browser's cookie settings to suit your preferences. More Information
The cookie settings on this website are set to "allow cookies" to give you the best browsing experience possible. If you continue to use this website without changing your cookie settings or you click "Accept" below then you are consenting to this.
Powered by
Support for this site is provided by
This platform is made possible through a partnership with the Sickle Cell Disease Association of America, Inc. (SCDAA) and its member organizations. SCDAA's mission is to advocate for people affected by sickle cell conditions and empower community-based organizations to maximize quality of life and raise public consciousness while advancing the search for a universal cure.